It's super important to keep your muscles loose and your joints active in order to prevent unnecessary pain. This is especially important when you're dealing with chronic pain already. To do this you will want to get in some daily stretching. Just keeping your body moving is going to help your pain levels compared to doing nothing. I talked about how bad deconditioning can be for our bodies and pain levels in last week's post. If you haven't given that a read, make sure to do so as it also contains some lower body stretches. This week we are going to focus on our upper body including our chest and back. The first two stretches will be for your neck and shoulders, which is especially great for migraine sufferers. The last video is a combination of arms, shoulder, back and chest stretches. As always be sure to check back next Friday for more exercises.

Seated Upper Trapezius Stretch

GOALS:  REPS: 3 | SETS: 1 | HOLD: 10 SEC | WEEKLY: 5X | DAILY: 2X

Instructions

Setup

• Begin sitting upright on a table grasping the edge with one hand.

Movement

• Rotate your head up and to the side of your anchored arm and slowly lean it toward your shoulder, applying pressure with your hand until you feel a stretch and hold.

Tip

• Make sure to keep your back straight during the exercise.

Cervical Rotation AROM with Overpressure

GOALS:  REPS: 3 | SETS: 1 | HOLD: 10 sec | WEEKLY: 5X | DAILY: 2X

• Begin in a standing upright position.

Movement

• Turn your head to look over your shoulder and gently push your chin with your hand. Hold briefly, then return to the starting position and repeat.

Tip

• Make sure to keep your back straight and do not bend your head forward, backward or sideways.

5 Minute Upper Body Stretch Routine

     For many patients with chronic illness, their doctors tell them that exercise will greatly improve their quality of life and this is true. With some exceptions, a lot of us were quite active before falling ill which caused us to stop sports, exercise, and even our daily activities. When we stop moving our body starts to go through deconditioning which can cause some nasty side effects. Muscle tone and bone density are lost, gastric motility is altered, sore muscles and aching joints appear, symptoms and pain get worse instead of getting better. It also causes problems with the cardiovascular system, laying in bed for just a few days causes blood to pool in the legs which can cause dizziness and fainting upon standing. Along with blood pooling, it causes the heart to beat faster causing less blood volume and oxygen in the body making you more fatigued.  Deconditioning is actually its own medical condition and when you have even one chronic illness you don't need anything else causing problems. Luckily there is a super easy cure for deconditioning that anyone can do, EXERCISE! Yep, that's all it takes. It's not and easy road easy, and it won't happen overnight, but I'm here to help you get started.


      The one exercise anyone can do is to stretch. which is an important part of any exercise routine. It helps get your muscles ready and warmed up to begin your work out. For people with chronic illness, many times deconditioning has happened due to symptoms and pain causing us to stop exercising. This can mean you may have limited movement in your joints and your flexibility is now what it used to be. Tight, aching muscles cause pain and that's exactly what we don't want. To do the following stretches you need nothing but a bed, chair, and motivation!

Modified Thomas Stretch

GOALS:  REPS: 3 | SETS: 1 | HOLD: 30 sec | WEEKLY: 5x | DAILY: 2x

Instructions

• Begin lying on your back at the edge of a table or bed with your knees bent and feet resting flat on the bed.

• Lower your outside leg off of the table until you feel a stretch in the front of your hip and hold.

• Try to keep your back flat on the bed during the exercise.

Tip

• Use towel around ankle if desired

Seated Hamstring Stretch

GOALS:  REPS: 3 | SETS: 1 | HOLD: 30 sec | WEEKLY: 5x | DAILY: 2x

Instructions

• Begin sitting upright in a chair with one leg straight in front of your body with your heels resting on the ground.

• Bend your trunk forward, hinging at your hips until you feel a stretch in the back of your leg and hold.

     



     First and foremost, If you have a condition where you should not be exercising as ordered by a doctor then do not attempt to exercise! If your doctor gives you the okay then continue reading about how exercise helped me feel better and why it is so important for those of us with chronic illnesses.

     I've had symptoms of chronic illness since I was 14 years old. The symptoms and pain gradually got worse over the years causing me to stop working and drop out of college. At the worst point, I was bed ridden from my illnesses starting around 2011/2012. My biggest problems being POTS and Fibromyalgia. My doctors continued to tell me exercise would help but the pain I felt and the symptoms I had deterred me from wanting to do much of anything. I basically laid in bed and felt sorry for myself. As people with chronic illness know you go through the stages of grief over losing the healthy person you once were. Nobody wants to hear that they should be doing yoga, strength training, stretches, and other simple exercise's when you feel like you are dying. So, I didn't and year after year I was always bedridden. It was better in the summer months and worse in the winter which we attributed to the weather so exercise was put on the back burner.

     Fast forward to 2015, I chose a healthier diet which included going gluten free. This was once piece of the puzzle that started me on the path to getting better. Gluten can cause some nasty inflammation issues which are bad for fibromyalgia and anyone with gastrointestinal issues. Lowering my pain a bit was step one to getting moving. Step to was finding a way to force me to exercise which happened in a really awesome way. My mom let me adopt a dog since they are so great for emotional support. This finally forced me to do what my doctor prescribed every single time I saw her and start exercising. No matter how bad I felt I had to get up, feed her, take her outside and walk her. This was not an easy task at all. When we started we walked slow, with many stops and not very far at all. It felt like I couldn't breathe just a 50 feet into the walk so we just went up and back down the street. I'm sure it was less than 1/4 mile but It was a starting point and at least I started. Soon enough I noticed the accomplishments I was making and this gave me the motivation to continue. I was able to go further, stop less and even conquer small hills. However, come winter I still wasn't feeling the way I wanted even though I could do considerably more than the winter before. 

     In April of 2016, my mom and I visited the Vanderbilt University Hospital POTS Clinic. There I was given propranolol to take during workouts and was told to drink 16oz of cold water 15 mins before exercising to alleviate POTS symptoms. I started walking more as my heart was able to handle the exercise better now. My dog and I were now able to walk one mile at a steady pace with minimal stops, including going up and down hills. I added in some stretching and the occasional yoga video. I continued to improve so when my doctor prescribed physical therapy for me again, I decided to go. It was the best decision I made. In just a few weeks I've learned how to exercise the right way in order to retrain my body. Each week I saw improvement in both my strength and cardio. Walking is fantastic, and light cardio is something you need to keep in the mix but strengthening your muscles is super important for improvement. Stronger muscles = better circulation = less blood pooling = less symptoms. I had no idea where to even begin with strength training before I started physical therapy, I took weight lifting class in high school but there was no way I could use those machines now. I was introduced to using resistance bands and my own body weight instead. The key was simple, low impact exercises that I could do a few times a day for 10 minutes each time. It doesn't take an hour of straight exercise to retrain your body, just 5 minutes twice a day or whatever you can handle can change everything. 

     I'm not going to lie about how this process went. It was one of the hardest things I ever had to do and I absolutely had to do it or I would not have gotten any better. If I had known that my doctor wasn't just trying to torture me by telling me to exercise I would have started sooner. The toughest part is starting because you are going to hurt and you will want to quit. This is why having someone hold you accountable is important. If you have insurance start with physical therapy before trying anything on your own. This will get you through the worst parts and give you all the tools you need to continue on your own. If that's not an option check back to my blog and I will post the exercises I've learned to get you started. Once you start seeing progress, however small it may be, it starts getting easier. In the beginning, your pain will most likely be worse than usual during or after your workout especially if you have been bed-ridden for awhile. Your symptoms will get worse also so you'll need to take the time to rest. The goal isn't to get better fast, it's just to get better. If you can only handle 5 minutes one day a week to start then do 5 minutes one day a week. If you can do 3 sets of 10 for 5 different exercises, then do that. No matter where you start, as long as you do something, you're already making progress. You'll be sore, tired and feel bad for awhile until your body gets used to exercise again but if you keep at it wonderful things can happen. You might not be able to run a marathon but being able to go out with friends or do your daily activities a bit easier is still a huge win. So grab your headphones, turn on your favorite TV show and exercise yourself better.

     Lets start by defining what a chronic illness and an invisible illness are. A chronic illness is one lasting 3 months or more by the definition of the U.S. National Center for Health Statistics. Chronic illnesses generally cannot be prevented by vaccines or cured by medication, nor do they just disappear. An invisible illness are chronic illnesses and conditions that are not outwardly visible. In the United States, 96% of people with chronic medical conditions show no outward signs of their illness, and 10% experience symptoms that are considered disabling. So unlike a chronic illness things like viruses, infections, broken bones and even cancer in many cases are curable meaning the patient is able to go back to living their life as they did before they feel ill in most cases. 



     I personally have fibromyalgia and postural orthostatic tachycardia syndrome(POTS). Fibromyalgia is a chronic disorder characterized by widespread musculoskeletal pain, fatigue, and tenderness in localized areas. POTS is one of a group of disorders that have orthostatic intolerance (OI) as their primary symptom. OI describes a condition in which an excessively reduced volume of blood returns to the heart after an individual stands up from a lying down position. Now that we have all of the definitions out of the way lets get into the daily life struggles a person with an invisible chronic illness encounters using someecards for humor.

1. Being Stuck at Home or on Bed Rest

2. Friends and Going Out